When GSL Organics Healthy Skincare found out our Kisses for Kyle families were in need of hand sanitizer, they went above and beyond making a new batch to send over 25 bottles! We just received them and are currently getting them into the hand of families who are in great need of this necessary item at this time.
Anyone who has been searching for hand sanitizer and haven't been able to locate any, this is a great place to order from!!! At this time they have a limited quantity, but for now, you can order 1 bottle. I just placed my order! Here is their website to view items and place your order to have it shipped to your door:
www.gslorganics.org/
Many thanks, again, to our friend Tracey Murphy who found GSL Organics and thought to reach out to the owner on the behalf of our Kisses for Kyle families! As the saying goes, the answer is no if you don't ask!!
Something beautiful to focus on today! Our friend Anais completed her chemotherapy treatment today to beat her cancer diagnosis! 💛🐞🎗💕
Eso Que bueno... Felicidades.... 💜💜💜 Dios es bueno... yo estoy ahora en la espera para hacerle los estudios a la nena el lunes fue su ultima químo se que todo va a salir bien quiero que mi Princesa toque la campanita de la #Victoria Y de 💜 me da mucha alegría que lo haigas logrado #Anais
4 days ago
Today Miss Emma will be receiving a bone marrow transplant to help save her life. She will need to stay in isolation along with many precautions. Look at this precious face! We first Met Emma’s family when Kisses for Kyle along with Vynamic helped them during the holidays. Please say an extra prayer and send good thoughts for a complete success with Emma’s continued journey towards health 💛🐞🎗💕
Prayers go a long way. She’s on my prayer list! Cristin Nicoletti is my friend who helps Kisses for Kyle!
1 week ago · 1If you are having difficulties navigating our present situation, we urge you to take the time to watch our Laynee & Heather, AKA our Adorable Duo, along with our PopPop “if we can do it, anyone can do it”. Our families are our INSPIRATION, let them be yours too 💛🐞🎗
Pediatric cancer survivor surprised with rainbow bike
6abc.com
"I finally have a new bike!" exclaimed 9-year-old Laynee, who is a two-time survivor of pediatric cancer. Community Journalist Matteo introduces us.
These Childhood cancer survivor Warriors deserve everything they receive after having battled the devil in there young lives Pop Pops Kustom Cars and Pop Pop are tremendous for their kindness and generosity to these great kids. THANK YOU POP POP... ......ON BEHALF OF THESE KIDS....WHO NEED EXTRA 💘 LOVE AND KINDNESS......FOR ALL THEY'VE BEEN THROUGH.....!!!
1 week agoHi everyone. This is Kyle's Mom, Executive Director with Kisses for Kyle. I normally keep my personal thoughts to my personal page. With everything happening, I thought to share my sentiments of my Kyle's Birthday which recently passed on March 15th. It is my hope this helps to bring some strength, love, compassion, care to someone who takes some time and would like to read today. We are thinking of all of our families and supporters with deep care and hope for better days.
On this day, 24 years ago, my first child, Kyle Samuel Snyder was born. So full of life. There were so many dreams filled with hope and promise. You never bring a child into this world with a plan to hold them for less than 1000 days. As much as I love sharing photos of Kyle, they are so limited and not what a mother should share and see each growing year. This is how I developed a mindset of try your best to fully be in the moment. Don't live in limbo waiting for something good to happen. It's good to plan, but know plans usually do not happen as planned. Don't worry so much about the what ifs, those what ifs usually don't happen but our worry created them to. If something bad happens, deal with it when it happens because worry is not going to change circumstance. When something does happen, what matters is what we do with it as we can't control most things in life.
This world is a crazy place, yes. Yet, it's no crazier today than it has ever been. My ultimate crazy happened in 1998 when not only was I told my child had a very aggressive form of leukemia, we needed to start treatment to hopefully save his life, a life that merely began. During this time, not only did I learn a lot about human nature, I was also taught strict regulations. Life for me would never be the same, ever again. We were told to make sure you wash your hands...this way, and for this long. Make sure if someone was sick or thought they were sick, to please stay away. The bubble baths, ballpits, friend's Birthdays, childcare, going in the ocean, walking on the sand at the beach, all of it needed to stop. Living in a neighborhood with kids his age going about their business, hearing them laugh and run around just broke my heart to pieces. I think trying to explain our "isolation" our new normal, was as exhausting as it got. Because no one "got it". Why would they? I wouldn't have. You don't understand something until you live it.
I began and decided to continue to run Kisses for Kyle for a number of reasons. The first reason being, I was a Mom but life took away me being able to parent. I knew what it was like to feel isolated and alone, I didn't want anyone else to feel such deep despair. I also wound up doing it to build a community where we didn't feel alone, including myself. I was able to surround myself with others who "got it", where I didn't have to explain who I have become. I was hard on myself for a very long time listening to my own noise and the noise of others telling me what I wasn't doing, instead of focusing on anything positive I was able to do. It took me a very long time to understand I need to focus on what I am able to do to help someone and not focus on what needs to be contributions of others to also do something positive. All the while, I knew my Kyle has been by my side, filled with love and kindness, wanting to provide love, comfort and care. His spirit is stronger than ever, helping me and so many others navigate this crazy life.
Most recently, I have been trying to figure out what seemed to be a strange calmness with many of our families, including myself. When the world around us is going into panic mode, why are we all so calm. I think I understand it now. What the entire world is currently experiencing is how we live our lives every day, but before this craziness landed, we were each isolated to a point not being able to fully express to others what they couldn't understand. Wash your hands this way, for this long, hand sanitizer, be careful around others, don't go near them if they are sick or have been around someone sick. Here is a long list of what you can no longer do, and here is your short list of what you can do.....with each of them doing it like true heroes. Everyone is not on equal ground, and in a very strange way, some individuals are able to give a little sigh of relief. I wish our families did not have to face what they go through. I wish Kyle didn't have to face what he went through. It breaks my heart to see where our world is currently. I HOPE this temporary time provides something positive, despite the bad. People should always come first. Health should always come first. We are not here to be selfish, bigger, better, more really isn't. We are all here for each other, to care for each other, to lean on each other, to provide love to each other.
Today I am doing what I do each day with some celebrations thrown in. Our annual scholarship application is launching to help provide up to TWO 1 year $5000 scholarships to students who have battled cancer and would like to pursue a major in helping other children facing cancer. We are inviting our families to our annual Ocean City Family Fun Day in June where they will receive unlimited rides, mini golf, family portraits on the beach and a day filled with something to look forward to at this time and memories they can reflect back on. I'll be asking everyone to PLEASE help our families as helping others in need truly does help us. As we celebrate Kyle's Birthday today, we are celebrating many families birthdays all month long in March. We need help to do this. If you would like to help, please let me know.
My Kyle, you would be a young man now, age 24. I miss who you would have been, I do however know your spirit and feel as connected to it now as I ever have. I LOVE YOU my sunshine ☀️🐞💛
A MAGNIFICENT STATEMENT...... Sharon, you and Kisses for Kyle have done tremendous things for families who are slapped in the face with reality when they are told that their child has CANCER.... when told, there's almost no time to think because you must hit the ground running and planning and doctors and hospitals and medicines and transportation and the world becomes a blur and tremendous DESPAIR sets in and as you said from that second on...... the world is never the same...EVER AGAIN ! I speak for RYAN NAULTY AND HIS MOTHER MICHELLE.... as Ryan uncle.... that the guidance you show them and love and kindness so they new that others have been through this and you helped soften the road... While these emotions and serious health decisions and transportation and on and on cloud Ryan's mom's head not knowing where to turn next 2 do the best thing for Ryan. As you know, Ryan had an inoperable malignant brain tumor and lost the sight in one eye, he has battled for almost five years, and while a portion of the tumor after many very hard and serious chemo.and and radiation treatments.... was in somewhat of remission until recently diagnosed again with another brain tumor this December 2019 just before Christmas and now is battling again at chop for his life. I read your statement and I can attest to the fact that unless a family or someone experiences this first-hand you can't imagine this tragedy to its full capacity and tragedy and life-changing seriousness, until you have lived it..... and you can speak firsthand because you have experienced this with Kyle and how heartbreaking it is to see this precious young one full of love and loyalty and 100% complete goodness battle for their life.....AND THEY HAVEN'T EVEN LIVED YET! Probably the most heartbreaking and gut-wrenching part of your statement aside from the loss of Kyle, was when you explained hearing kids in the neighborhood running and laughing, just being kids, the not being able 2 go to school, missing classmates and Friends, the Simplicity and innocence of their life, their completely truthful and funny questions and statements, AND THEIR UNCONDITIONAL LOVE AND LOYALTY AS ONLY A CHILD CAN PROVIDE WITH THEIR UNVARNISHED INNOCENCE !!! Those sights and sounds, to someone who hasn't had a child has spent the better part of their life in hospitals and around doctors.... and the children's Recreation is riding a small tricycle in the hallways of a hospital or being amused while they are being pushed on their chemotherapy poles...AND BATTLING THIS 👹 MONSTER CALLED "CHILDHOOD CANCER" , WITH COURAGE AND DIGNITY...could never fully understand (RESPECTFULLY)...... but Sharon in your Witness to this great tragedy and your loss of that innocent precious angel, Kyle , you have helped a tremendous amount of folks whose lives were changed from THE DARK HOLE OF DESPAIR ,DEPRESSION , HOPELESSNESS , EMPTINESS AND NEW REALITY FROM THE SECOND THEY WERE TOLD THEIR CHILD HAS CANCER..... you provided kindness and comfort and love and GUIDANCE to these children and families to not feel so lost and be able to concentrate on their children's health and how they must learn to cope with this tragedy. Also, to your tremendous credit, you never forgot that these horribly sick children have brothers and sisters who witness this heartbreak and include them in all the activities so these families FEEL LIKE A COMPLETE 👪 FAMILY.........YOU AND 💋 KISSES FOR KYLE HELP CREATE MEMORIES , WHICH WILL LAST A LIFETIME...WHICH ARE INVALUABLE.......!!!!! You helped Ryan's mom through this period and through kisses for Kyle we saw a Phillies game AND MEMORIES WERE CREATED FOR A LIFETIME FOR US AND MORE IMPORTANTLY....HIS YOUNGER BROTHER ERIC...!! So I write this note to you with APPRECIATION , 💘 LOVE AND COMPASSION.....FOR ALL YOU DO FOR CHILDREN WITH CANCER AND THEIR FAMILIES.....IN SPITE OF YOUR LOSS OF KYLE...... MAY I SAY, WITH 💘 LOVE , ON KYLES ' BIRTHDAY , HE HAS GIVEN US THE BEST MOM ANYONE COULD ASK FOR....HIS LEGACY LIVES ON , SHARON , THROUGH YOU AND YOUR ACTS OF KINDNESS , COMPASSION AND GENEROSITY....... Once again, I THANK YOU....ON BEHALF OF RYAN , HIS MOTHER MICHELLE , HIS BROTHER ERIC AND THE NAULTY FAMILY..... and hopefully I believe all the other families with children with cancer you have helped agree with my PASSIONATE ....THANK YOU..... WE ALL LOVE KYLE AND YOU.....AS WE ARE FAMILIES WITH CHILREN WITH CANCER TOO....
2 weeks agoYesterday a notification came through saying we received a $500 donation in memory of Kyle’s Birthday by one of our family’s, Chris, Melissa & Andrew Trouts. I read the following which brought me to tears streaming down my face. Due to their gratitude and compassion, 25 of our family members in the month of March will be celebrated in honor of their precious son Andrew who battled Burketts leukemia & and a childhood cancer survivor! Thank you Trouts family and ERM Inc.!!! 💛🐞🎗🎂💙
“Dear Sharon – I’m so happy to donate $500 today to the KFK Birthday fundraiser on behalf of the Trouts family and my company, ERM Inc. I recently hosted a two-day soft pretzel fundraiser in our Philadelphia and Princeton offices to share the cancer survival story of my son, Andrew, and bring attention to the most worthy beneficiary, the Kisses for Kyle organization. I am short on words to describe my admiration for you and the incredible organization you created out of so much loss and sorrow. Our little Andrew was diagnosed with Burketts Leukemia just days before his 3rd Birthday. He blew out his birthday cake candles from our residence in the inpatient oncology ward of 3 South at CHOP. From there, his 9-month chemotherapy journey began. Through many complications, including a near fatal infection, Andrew battled on and ultimately completed his treatment in October 2018 with no remaining sign of cancer. We pray every day that is post-treatment monitoring continues to show no sign of recurrence. Our family received overwhelming support through those trying times from countless individuals and organizations. Among the incredible shining lights in our dark times was Kisses for Kyle. The compassion, care and support that you showed our entire family, from the smallest gestures of kindness to the grandest gifts of Christmas support and event participation, brought much needed moments of joy to our troubled lives. You may never know the full impact your selfless giving has on our community, but today I want you to know you will always have a special place in the hearts of the Trouts family. With love and gratitude – Chris and Melissa Trouts”
Important info from our friends at ALSF for our families whose children are facing cancer. Solid info for adults as well and anyone with a compromised immune system.
How to Protect Children with Cancer (Tips during COVID-19 season)
alexslemonade.org
Children battling cancer not only face the health effects of the cancer itself, but they also face short- and long-term side effects. During treatment, typical therapies like chemotherapy and radiation can compromise a child’s immune system, putting them more at risk for illnesses like COVID-19. T...
Many thanks to Bar Lucca, one of the amazing restaurants with Pieri Restaurant Group, for hosting this month’s Kisses for Kyle Food is Love lunch at St Christopher’s Hospital for Children. They delivered a delicious lunch of pasta, sandwiches, & salads and set everything up to treat families whose children are being treated for cancer. So appreciative of this care!
True highlight of what I do, I get to meet the kindest individuals throughout this journey of helping our Kisses for Kyle families facing childhood cancer. Thank you McHales Cares and everyone who helped us receive this very generous $1000 donation! Another good day to help our families 😊💛🐞🎗McHales Inc.
"When your child is diagnosed with cancer- your world comes crashing down. In our case- Sharon and Kisses for Kyle was there to lift us back up. Putting smiles on OUR ENTIRE FAMILIES faces. We have found a lot of times siblings are left out when it comes to things. This is not the case with Kisses for Kyle, and for that we will forever be grateful. From Phillies games, to family day in Ocean City, to involving the siblings on volunteering for the fashion show when Cody was in it, sending birthday cards and Christmas presents, summer camp with a sibling! Our family has found so much joy in such a sad time of our lives thanks to Kisses for Kyle!!!"
Kisses for Kyle Foundation, under the direction of Sharon, and her team, goes to so many special lengths to bring a family up when dealing with your child having cancer, along with the rest of the family, especially siblings. Our family will always be grateful for them taking care of our sick grandson, and his brother. (OC family day is amazing!)Thanks be to God, our boy survived bone marrow transplant. He is now 12, and his brother is 14. Thank you, Sharon, and Kisses for Kyle. Your Kyle lives on in all you do, and the children/siblings, whose lives you touch.
4 weeks agoSharon Snyder & Kisses for Kyle - Thank You for all you do for so many! 💕🌸💞
4 weeks ago
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